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Rare illness in spotlight

Davin Basi, 18, of Intake, is hoping to raise awareness of Visual Snow Syndrome. Picture: Marie Caley

Davin Basi, 18, of Intake, is hoping to raise awareness of Visual Snow Syndrome. Picture: Marie Caley

A teenager with a rare neurological condition that affects his vision is on a mission to raise awareness of the disorder after medics were unable to help him.

Davin Basi, aged 18, of Intake, suffers Visual Snow Syndrome – a rare condition that causes symptoms including double vision and light sensitivity.

The main symptom of the syndrome is the appearance of ‘snow’ – where black and white or coloured dots flicker through the entire visual field, similar to static seen on a television.

But Davin has been left with nowhere to turn as medics are baffled by the condition that is in the very early stages of scientific research.

Davin, who has suffered from the condition since he was 12, is now hoping to raise awareness and funds to help find a cure.

He said: “There is very little awareness regarding this disorder within both the medical profession and wider society alike.

“Each time I go to visit an eye specialist, they have no idea what I’m talking about and don’t seem to take it seriously.

“Although it is rare thousands of people suffer from it around the world, and it’s something that does get me down.

“It’s really frustrating that doctors and eye specialists haven’t been able to help.

“So I want to do as much as I can to help raise awareness and funds to help find a treatment.”

Researchers are in the process of trying to find a suitable treatment for the condition and a crowd-funding campaign has been set up by an American charity, the Eye On Vision Foundation, which has previously funded research into the condition to raise $50,000 to fund the work.

Visit www.gofundme.com/visual-snow for more details about the condition and for details on how to donate to the campaign.

 

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