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Kai’s pledge to give something back

Kai Diawne, 7, from Doncaster, who was diagnosed with a rare brain condition when he was just four-years-old and now regularly visits The Childrens Hospital, Sheffield for treatment.

Kai Diawne, 7, from Doncaster, who was diagnosed with a rare brain condition when he was just four-years-old and now regularly visits The Childrens Hospital, Sheffield for treatment.

A youngster who underwent life threatening brain surgery is giving something back to the staff that cared for him.

Little Kai Diawne from Hexthorpe is planning to raise cash for Sheffield Children’s Hospital by taking part in the Make It Better Day appeal.

Seven-year-old Kai was diagnosed with a Chiari Malformation when he was aged four.

The condition, which meant lower parts of his brain had been pushed down towards his spinal chord, was detected by an MRI scan.

Kai suffered problems with his balance and learning but doctors said they would not operate unless the effects became life-threatening as the procedure carried a high risk.

Mum Michele noticed late last year Kai had deteriorated and an MRI scan confirmed pressure was building on his brain.

An operation, known as Chiari Malformation decompression, was scheduled for January.

Unfortunately, Kai suffered a number of complications and subsequently had to go into surgery nine times, causing his family a lot of distress.

Michele said: “I was worried, anxious, and hoping it would be the last time he would have to go to theatre.

“It was very upsetting, all I wanted to do was give him a big hug.

“While it was a lot for a little boy to go through, Kai was really brave, I was so proud of him.”

Six-and-a-half worrying weeks later Kai was well enough to return to the family home in Hexthorpe, Doncaster.

Today he looks to be on the road to recovery and is back at school and playing happily with sisters Laila, eight, and Tamzin, 10.

And the family are now backing Sheffield Children’s Hospital’s Make It Better Day appeal on June 27 which is raising cash to help fund a transformation of the hospital.

Michele said: “The help and support of all the hospital staff, including the neurosurgery team and the nurses on S2, has been absolutely brilliant, I can’t thank them enough.

“Kai has already signed up for his fundraising pack and is coming up with lots of weird and wonderful ways to raise money on June 27 to thank the hospital staff for all they’ve done.” The appeal will fund a new building and outdoor space.

 

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